Properties of the EQ-5D-5L in the Canadian Population: Minimal Important Difference and Comparative Performance with other Measures in Large Scale Health Applications: This program of research has two general aims: 1) to compare the measurement properties of the EQ-5D instruments (3- and 5-level) with other generic and disease-specific measures of health status and health-related quality of life, with particular attention to the individual dimensions of the EQ-5D; and 2) to generate estimates for a minimal important difference (MID) for the EQ-5D-5L index score.
Evaluation of routinely Measured PATient reported outcomes in HemodialYsis care (“EMPATHY”) Trial: This project aims to determine the effects of routine measurement and reporting to care providers of patient-reported outcome measures (PROMs) namely the modified Edmonton Symptom Assessment Scale – renal (mESASr) and/or the EQ-5D-5L on patient reported experience, particularly patient-clinician communication, for patients with chronic kidney disease (CKD) undergoing hemodialysis. The EMPATHY Trial will be a large, multi-center cluster randomized trial, involving up to 80 dialysis units in Ontario, Alberta and BC. The EMPATHY Trial is one project under the umbrella of a large, pan-Canadian research network known as CAN-SOLVE CKD.
The use and measurement properties of EQ-5D in vulnerable populations: A systematic review of the literature: The objective of this review is to identify, summarize and appraise the literature on the use and measurement properties of EQ-5D instruments in socially vulnerable populations, i.e. populations who are at risk of adverse health outcomes due to the socioeconomic environment and resources; including but not limited to homelessness, substance abuse among others.
PROMs in Primary Care Networks in Alberta: An end-user perspective: APERSU’s team collaborated with the Primary Care Measurement Capacity Initiative (MCI) group led by Dr. Scott Oddie with Alberta Health Services, on a project that explored the use of PROMs in primary care networks (PCNs) in Alberta, and identified the facilitators and barriers to PROMs implementation in this setting.