Resources

Webinars

Featured Webinar

July 30, 2020. Title: The use of routinely collected PROMs data at Cancer Control Alberta
Webinar materials: Presentation Slides


APERSU Webinar Series

May 28, 2020. Title: The use of routinely collected PROMs data in Community Rehabilitation in Alberta
Webinar materials: Presentation Slides

March 26, 2020. Title: “How can we use routinely collected PROMs data to support decision-making within the healthcare system?
Webinar materials: Presentation Slides

September 5, 2019. Title: “Minimally Important Difference (MID) of patient-reported outcome measures (PROMs): What it is, and when and how to use it?”
Webinar materials: Presentation Slides

June 20, 2019. Title: “Disease-specific PROMs: When and how to use them?
Webinar materials: Presentation Slides

April 25, 2019. Title: “The use of PROMs/EQ-5D in economic analysis” Webinar materials: Presentation Slides

February 27, 2019. Title: “Comparing PROMs/EQ-5D data with population norms
Webinar materials: Presentation Slides

June 27, 2018. Title: “The Use of EQ-5D in Clinical Practice (focus on primary care)
Webinar materials: Implementation of EQ-5D Assessment in Clinical Practice – Guidelines Summary

May 16, 2018. Title: “EQ-5D in Economic Evaluations
Webinar materials: Case Scenario BCase Scenario CWorkshop Appendix

May 11, 2017. Title: “EQ-5D in Program Evaluation

June 15, 2016. Title: “Collecting, analyzing and interpreting EQ-5D data”


Other Webinars

Janssen Pharmaceuticals PROs team, August 21, 2017 (invited talk). Title: “How well does the anxiety/depression dimension of the EQ-5D-3L and 5L perform in assessing changes in mental health“.

Strategy for Patient-Oriented Research (SPOR) Training Program, May 31, 2017. Title: “Capturing the patients’ voice: The use of PROMs and PREMs in patient oriented research“. Janssen Pharmaceuticals PROs team, August 21, 2017 (invited talk). Title: “How well does the anxiety/depression dimension of the EQ-5D-3L and 5L perform in assessing changes in mental health“.

Alberta Health Services, November 25, 2015. Title: “Alberta PROMs and EQ-5D Research and Support Unit (APERSU): A Brief Introduction”.

Measurement Capacity Initiative Network and Primary Care Network, November 24, 2015. Title: “Alberta PROMs and EQ-5D Research and Support Unit (APERSU): A Brief Introduction“.


Seminars

PCN Physician Leads Forum, January 30, 2016. Title: “Alberta PROMs and EQ-5D Research and Support Unit (APERSU): A Brief Introduction“.

School of Public Health, University of Alberta, Guest Speaker Series, February 10, 2016. Title: “Alberta PROMs and EQ-5D Research and Support Unit (APERSU): A Brief Introduction“.

ACHORD Research Update, February 11, 2016. Title: “Measuring and Valuing Health: Applications of the EQ-5D”.

Department of Community Health Sciences/O’Brien Institute for Public Health Seminar Series, April 1, 2016. Title: “Alberta PROMs and EQ-5D Research and Support Unit (APERSU): A Brief Introduction“.

Women and Children Health Research Institute (WCHRI) Lunch and Learn, Monday, April 18, 2016. Title: “Alberta PROMs and EQ-5D Research and Support Unit (APERSU): A Brief Introduction”.


Podcasts

http://healtheconomicspolicy.podbean.com/

The University of Calgary ISPOR Student Chapter, in collaboration with the University of Alberta, is proud to present a new podcast series in Health Economics and Policy: Informing and understanding healthcare decision-making in Alberta and abroad.   The fourth podcast in the series is now available! The Measurement of Health-Related Quality of Life features Dr. Fatima Al Sayah, Research Associate with the Alliance for Canadian Health Outcomes Research in Diabetes (ACHORD) research group, School of Public Health, University of Alberta, and Research Manager of Alberta PROMS and EQ-5D Research and Support Unit (APERSU).  


PROMs Resources

APERSU PROMs White Paper

APERSU developed a White Paper to provide a brief overview of PROMs and their use in Alberta and guidance to enhance the use of these measures within the healthcare system in the province.











 EQ-5D in Primary Care Networks

The EQ-5D can be used at different levels within the healthcare system for various purposes; some are outlined in this one-pager within primary care.










International Meeting for Health System PROMs Users: Meeting Proceedings

The EuroQol Group hosted a meeting in Brussels, Belguim, on September 17, 2019, to bring together PROMs users in routine outcome measurement within healthcare systems from around the world. The aim of the meeting was to share experiences and learnings, and discuss priorities for research and developments in the use of EQ-5D within health systems. The meeting proceedings include the meeting program, a summary of each presentation and discussion sessions, and a list of participants.







Webinars on PROMs Use

May 28, 2020. Title: The use of routinely collected PROMs data in Community Rehabilitation in Alberta
Webinar materials: Presentation Slides

March 26, 2020. Title: “How can we use routinely collected PROMs data to support decision-making within the healthcare system?
Webinar materials: Presentation Slides


Research Insights

About APERSU

Click here for information on APERSU.











Why measure HRQL?

Click here to learn about health-related quality of life.











Minimally Important Difference (MID) of the EQ-5D-5L Index Score

Click here to learn about the minimally important difference of the EQ-5D-5L index score and how it can be used.











What is a QALY?

Click here to learn about a Quality Adjusted Life Year (QALY).












YouTube Channel


EQ-5D Nomenclature

The EuroQol Group published a commentary entitled: EQ-5D, a plea for accurate nomenclature.

‘EQ-5D’ is not an abbreviation; it is the correct term to use, as are ‘EQ-5D-3L’, ‘ED-5D-5L’, and ‘EQ-5D-Y’ and they require no further definition. In the interests of accuracy and good practice, the EuroQol Group urges users of its instruments to employ the standard EQ-5D nomenclature when reporting and discussing their findings.

The commentary can be accessed through this link.


External Resources

EuroQol Group: http://www.euroqol.org/

Health Quality Council of Alberta (HQCA): http://hqca.ca/studies-and-reviews/health-outcomes-measurement/

Canadian Institute for Health Information (CIHI): https://www.cihi.ca/en/health-system-performance/quality-of-care-and-outcomes/outcomes/patient-reported-outcome-measures

Institute of Health Economics (IHE), Canada: http://www.ihe.ca/

The University of British Columbia (UBC), Patient Reported Outcomes Blog: http://patientreportedoutcomes.ca/

Mapi Research Trust: http://www.mapi-trust.org/

PROQOLID: https://eprovide.mapi-trust.org/about/about-proqolid

National Health System (NHS), UK: http://digital.nhs.uk/proms

National Centre for Health Outcomes Development at the University of Oxford (NCHOD): http://nchod.uhce.ox.ac.uk/

Office of Health Economics (OHE), UK: https://www.ohe.org/

International Society of Quality of Life Research (ISOQOL): http://www.isoqol.org/

International Society For Pharmacoeconomics and Outcomes Research (ISPOR): https://www.ispor.org/

Health Technology Assessment International (HTAi): http://www.htai.org/

Health Measures: http://www.healthmeasures.net/index.php